Community Resources of the Network

Community Care

  • Outreach nursing provision
  • There are a number of haemoglobinopathy specialist nurses who support patients within the community. These are a mixture of Hospital funded and community funded positions but they all work in concert with local and specialist haemoglobinopathy teams
  • See community specialist haemoglobinopathy nurses for further details


  • General Practitioners and Practice nurses:
  • General practitioners and practice nurses are available for all non-haemoglobinopathy related complaints and are very important in ensuring immunisations for all patients are up to date
  • Health visitors
  • As with all children health checks are performed. In some cases these may be combined with the specialist haemoglobinopathy nurse visits
  • School nurses
  • School nurses should be able to implement the child’s school care plan and help with any acute health issues that appear whilst at school


  • Voluntary services
  • There are a number of voluntary services available within the West Midlands network who perform vital work in improving the lives of children with haemoglobinopathy.
  • See patient support groups for further details